The CdLS Story Bank is a collection of stories from parents, relatives, friends, and caregivers who wish to share their CdLS experience.

These stories let others know they are not alone.
They also provide inspiration, insight and, at times, a little humor.

Mailing Address:
Cornelia de Lange Syndrome Foundation
302 West Main Street, #100
Avon, Connecticut 06001 USA

The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS,
promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives.