Cornelia de Lange Syndrome Foundation, Inc.
302 West Main St. #100
Avon, CT USA 06001
Phone: 860-676-8166
Phone: 800-223-8355
Fax: 860-676-8337
email: info@cdlsusa.org

Press Room

Welcome to the CdLS Foundation Press Room. Here you can view 2008 CdLS Foundation press releases and CdLS-related news coverage. For specific information about CdLS and the Foundation, please go to About Us. Links to 2006 and 2007 press archives are below.

News Releases

Foundation receives $5,000 grant from Quest Diagnostics Foundation (12/15/08)
The Cornelia de Lange Syndrome (CdLS) Foundation received a $5,000 grant for its CdLS Multi-disciplinary Clinic for Adolescents and Adults...
Dinner Dance Fundraiser Swings into Action on Nov. 8th (10/16/08)
The 4th Annual CdLS Dinner Dance Fundraiser to benefit the Cornelia de Lange Syndrome (CdLS) Foundation is held....
Savage Mill Hosts Charity Costume Ball to benefit nonprofit organization (10/16/08)
The first Annual Charity Costume Ball takes place on Fri., Oct. 31 from 7 to 11 p.m. at....
CdLS Foundation appoints Communications Coordinator (10/16/08)
Jennifer Sangeloty has been named communications coordinator for the Cornelia de Lange Syndrome (CdLS) Foundation,....
Golf tourney to benefit children with CdLS marks 16th year
The Cornelia de Lange Syndrome (CdLS) Charity Golf Tournament marks its 16th year....
Seattle Indoor Raceway hosts race to benefit children with CdLS
The Seattle Indoor Raceway hosts the third annual “Race for Grace,” Saturday, May 10....
CdLS Foundation adds board members (4/16/08)
The Cornelia de Lange Syndrome (CdLS) Foundation has added four new members to its Board of Directors....
Cornelia de Lange Syndrome National Awareness Day is May 10 (4/16/08)
Each day, a baby is born with Cornelia de Lange Syndrome (CdLS).....
Foundation Names New Executive Director (1/10/08)
Liana Garcia-Fresher has been named executive director....
Fourth annual road race benefits children with genetic syndrome (1/9/08)
The Fourth annual For the Love of It 5K to benefit....

CdLS in the News

Davie Family Hopes Santa Can Ride To The Rescue (12/18/08) cbs4.com
It's something almost every kid has asked Santa for at Christmas time. But, when you are a child with special needs, finding and riding a new bike is not easy....
Family adjusting to life with child stricken with rare disease (11/21/08)
Ocala Star-Banner
Cherie Acevedo's dream of having a healthy child faded early in her pregnancy...
Team raises $80K at Chicago Marathon for rare disorder (10/14/08)
Daily Gazette
Beth Smisloff may have been disappointed with her time Sunday when she ran the Chicago Marathon, but she was thrilled with the amount of money her team raised for the Cornelia de Lange Syndrome Foundation...
For 2 Moms, Race To Raise Awareness Is On (10/10/08)
The Rivertowns Enterprise
Two Rivertowns mothers will be running in the 31st annual Chicago Marathon....
This race is ultra important to Needlman (10/7/08)
Lincolnshire Review
For Lincolnshire's Marc Needlman, this Sunday's 26.2-mile Bank of America Chicago Marathon will be a sort of a walk in the park....
Living with Cornelia de Lange Syndrome (3/12/08)
Warwick Beacon
The parents of 11-year-old Doug Canning consider themselves very lucky. …
Acceptance Guaranteed (Part 1) (5/7/08)
The Keene Sentinel
There's a place Amy N. Haskell can go where no one will ask uncomfortable questions. …
Acceptance Guaranteed (Part 2) (5/7/08)
The Keene Sentinel
Walk-a-thon to Raise Awareness about CdLS (5/9/08)
Seacoast News
Mom Marcia Knowles is rallying a "Hoof It 4 Hunter" walk-a-thon to raise awareness. …
Hope for Hunter (5/9/08)
The Daily News
Tiny, 2-year-old Hunter Knowles is a precious toddler -blond curls and big, blue eyes. …

2006 News Archive

2007 News Archive

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Last Updated 12/27/08
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